The Cyprus Institute of Neurology and Genetics (CING) will host a European conference on rare diseases on June 16, jointly organised with the Deputy Ministry of Research, Innovation and Digital Policy ...

Ultragenyx’s Rare Bootcamp gives families a roadmap to help drive research and develop new treatments for rare diseases.

Mississippi is launching a Rare Disease Task Force within the Mississippi Rare Disease Advisory Council to study issues ...

CLEVELAND, Ohio — Browns owners Dee and Jimmy Haslam are giving $12.5 million to University Hospitals and an affiliated ...

Addressing the gathering, Union Health Secretary Smt. Punya Salila Srivastava highlighted that India’s rare disease response has evolved significantly over the past decade.

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...

Across America, millions of parents of children with rare diseases are in a race against time, hoping that new treatments will be developed fast enough to save their kids. Thanks to advances in ...

Rare disease families are increasingly driving research efforts to find treatments for their children. Ultragenyx’s Rare ...

When it comes to results, few people deliver like President Donald Trump. During my four years in the White House as special ...

The seven-year medical odyssey that once defined rare disease diagnosis is being rewritten by algorithms capable of identifying medical zebras in the time it takes to refresh your social media feed.

The Boards of Directors of Angelini Pharma and Catalyst Pharmaceuticals have unanimously approved the acquisition of Catalyst Pharmaceuticals at ...